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Day 19 - The Waiting Game

11/19/2013

9 Comments

 
Picture
If you have been following me for any amount of time you will know that Girl has been having some tummy issues that we have desperately been trying to figure out.  What you don't know is that it has been going on for her entire life.  What you don't know is that we have seen several specialist none of which have been very helpful. They all toss meds at us and tell her to drink more water and eat high fiber. (DUH!) I've done tons of "Mommy" research and I mean TONS.  So much that my head feels like it is going to explode at times.  I've learn about elimination diets, dairy intolerance, gluten intolerance,  GAPS, colitis, celiacs disease IBS, diverticular and hirschsprungs disease just to name a few. 
All of this information has lead to the shift in our diets (yes, all of us because I can't just change meals for just one very easily now can I?) and to family members thinking I should be sent to the local funny farm....and on occasion I think checking myself in might not be a bad idea.
Finally, 3 months ago when Girl went in for her yearly sports physical (yes, I said SPORTS PHYSICAL) the doctor ask me if there was anything about Girl that concerned me.  On a whim I took a chance and said yes.  I told her I thought Girl might have a gluten and or dairy intolerance and that I would like food allergy testing done.  At first she scoffed at me and told me I needed to see my PCM, and that this wasn't her lane. But in the best Texas charm I could muster I told her not to worry about it - that I didn't expect her to do anything since not one doctor has help us yet, not even Girl's PCM, but it was worth a shot.  I must have gotten under her skin because she looked at Girl's file and started asking questions. 30 minutes later I walked out of her office feeling better than ever. This doctor listen.  I mean REALLY listened.  AND she helped!  She even made phone calls - several of them.  I left with an appointment to a specialist at a top ranked hospital in Seoul.  Several months and many test later we are closer to an answer.  Unfortunately, it was not a gluten or dairy intolerance.
Now we wait, wait, and wait some more.
9 Comments
Christy
11/18/2013 08:17:31 pm

Trish, you have our prayers and admiration. Thank you for being so transparent - your courage could be just what another momma needs in order to get the right help for HER child! You are a fantastic mom and sweet girl is blessed to have you fighting in her corner!

Reply
Kathie
11/18/2013 08:39:19 pm

I'm sorry your battle has been so long! Give girl and yourself a extra long hug!!!!!!!

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Kathie
11/18/2013 08:42:05 pm

Is she in a child's bed? Girl is soon not a child!!!

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Didem
11/18/2013 09:01:38 pm

Trish, I hope she'll feel better soon! Please let me know if I can be any help to you in the Korean hospital. Don't hesitate calling me and I can join you during the hospital visits. Lots and lots of hugs to you friend!

Reply
Tori
11/18/2013 11:32:27 pm

I have Crohn's. it is stress induced, in my situation. Have her tested for it.

Reply
Kaylene
11/19/2013 10:10:05 am

It is surprising to hear your story since it is the same thing I am going through right now with my daughter. She has had stomach problems her whole life and over the last few months it has been progressively getting worse. I have dealt with Dr's suggesting it is maybe an attention problem, or a way out of class at school, suggesting that there may be problems at home causing her stomach problems. I was infuriated with these suggestions! My husband and I have done everything we can to make my children's lives a good, safe, secure environment and every time she is sick with something I get the 3rd degree about our home life. Anyways I finally got a great Dr. She listened to all of my concerns and ordered some tests. My daughter is not gluten intolerant or lactose intolerant and the meds they have put her on are not really helping at all. Today her specialist ordered a colonoscopy and endoscopy. Please keep this updated if you get any answere before me. I can definitely relate with how you feel. It is so frustrating being helpless to my daughters stomach relief. There are no foods or medicine that can take it away so far

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Amy
11/22/2013 08:52:42 am

I hope you can get some answers here.

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Amber
11/22/2013 08:53:03 am

Glad you posted it! It is such a part of your life right now. XO

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Shauna
11/22/2013 08:55:31 am

Have you looked into FPIES? My son has food allergies, so I have some experience with your struggles. I didn't see you mention it, and it's a more gastro based food allergy response. Just a thought. All the best to you and to her from a momma who gets it.

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    Project 365

    Am I insane?  Have I lost my mind?  After thinking long and hard about it (OK, really I only thought about it for about 12 hours) I just committed to doing a photo a day for a year - a 365 'they' call it.  This is going to be SUPER HARD for me. Not the photo part, but the editing part. I mean you guys KNOW how far behind I am.  A photo a day - that doesn't sound like much, but in reality, who are we kidding?  Anyway  I'm going to TRY to post each day, but there will be times I might be MIA for a couple of days, just bear with me and I will catch up.

    One of my goals throughout this 365 is to be able to shoot anything I want to in manual. The next is to have fun capturing this next crazy year of our life. In the next 365 you will see: at least 2 more countries, a HS graduation, an international move to most likely 2 different states, the heartbreak of a mom as she sends her first born off to college and so much more....

    Please make sure you cheer me on after all I am a "Words of Affirmation" girl. :o)

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